Cystic Fibrosis Canada
Cystic Fibrosis Canada has dramatically changed the cystic fibrosis story.
We have advanced research and care that has more than doubled life expectancy. Since being founded by parents in 1960, Cystic Fibrosis Canada has grown into a leading organization with a central role engaging people living with cystic fibrosis, parents and caregivers, volunteers, researchers and healthcare professionals, government and donors.
We work together to change lives for the 4,400 Canadian children and adults living with cystic fibrosis through treatments, research, information and support. Despite our remarkable progress together, we are not yet done.. We will keep pushing, keep going further until all people with cystic fibrosis can and do experience everything life has to offer —and enjoy everything life has to offer.
4400
Canadians living with CF need yearly specialized hospital care.
50%
Of Canadians with CF will die before reaching 37 years old.
ALL
Our community members’ mental health is affected by this disease.
From a very young age, I saw my parents getting involved with Cystic Fibrosis, collecting donations for the annual walk, organizing neighborhood BBQ for the cause, etc. After a while my whole family joined forces and over time we built the “Tournoi du Golf de L’Espoir”. Because, despite the passage of time, we must remain hopeful that a cure will be found, that research will advance and that people with Cystic Fibrosis live better, longer lives.
- Suzanne Hébert & Sandra Déry, Change Makers
What is Cystic Fibrosis?
Cystic fibrosis (CF) is the most common fatal genetic disease affecting Canadian children and young adults. There is no cure. Of the Canadians with cystic fibrosis who died in the past five years, half were under the age of 37. Cystic fibrosis is a progressive, degenerative multi-system disease that affects mainly the lungs and digestive system. In the lungs, where the effects are most devastating, a build-up of thick mucus causes severe respiratory problems. Mucus and protein also build up in the digestive tract, making it difficult to digest and absorb nutrients from food. In addition to the physical effects of the disease, mental health concerns are emerging; anxiety and depression are common among this population. Double lung transplants are often the final option for patients with end-stage disease; most fatalities of people with CF are due to lung disease.
